WELCOME

This year, the World Spina Bifida and Hydrocephalus Day 2022 was a special highlight as it marked the 10th edition to raise global awareness together with YOU. It is very nice to see the many activities taking place in countries all around the world to “Elevate Your Voice”.

On this day, the International Federation for Spina Bifida and Hydrocephalus (IF) together with worldwide members led an impactful awareness raising campaign on social media.

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Contact info@ifglobal.org to display your activities held on the occasion of the World Spina Bifida and Hydrocephalus Day 2022.

World Spina Bifida and Hydrocephalus Day 2022 - Conference 'Elevate Your Voice'

During the WSBHD Conference, IF members from the regions Africa, Americas, Asia-Pacific, and Europe shared how their associations “Elevate their Voices” for this year’s WSBHD22! You are warmly invited to watch this 10th edition of the World Spina Bifida and Hydrocephalus Day!

World Spina Bifida and Hydrocephalus Day 2022 - Talent Show

On the occasion of the 10th edition of the World Spina Bifida and Hydrocephalus Day, the International Federation for Spina Bifida and Hydrocephalus launched a Talent Show! The youth with Spina Bifida and Hydrocephalus from around the world joined the show. You can now watch all their contributions.

WSBHD22 Side Event Africa 

'Elevate Your Voice to Creative Rehabilitation'

IF Member Association, Spina Bifida Federal Association of Sudan, together with IF will hold a regional side event on the occasion of the WSBHD22 on the theme of 'Rehabilitation for a Creative Life'.

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WSBHD22 Side Event Americas 

'Elevate Your Voice to Autonomy and Independent Living'

IF Member Association, Fundación Mónica Uribe Por Amor (Colombia) organised together with IF, a regional side event to the WSBHD22 on the theme of 'Independent Living and Autonomy' where four testimonials from self-employed persons with SBH and professionals were shared. More than 110 families attended this side event!

WSBHD22 Side Event Europe

'Elevate Your Voice to the Path Towards Independence'

IF Member Association, ASBI Italy, together with IF organise the WSBHD22 regional side event for Europe. This side event will be held through four sessions and cover four themes: Transitional care, Spina Bifida Registry, The path towards independence and Disability and sport. 

IF Member Association SHA-U, Uganda, together with the Ministry of Health organised the conference 'A call for National action to reduce the prevalence of birth defects through food fortification; folic acid supplementation and dietary diversity in the country'   

The National Coordinator of Spina Bifida and Hydrocepharus Association of Uganda (SHAU) Ruth Nalugya asked women of child bearing age to watch what they feed eat and include vegetables, fruits and at least one tablet of Folic Acid to reduce the risk of giving birth to a child with such a defect. The Ministry of health has revealed plans to deploy equippments and neurosurgeons to the different regional referral hospitals across the country in abide to bring closer treatment and management of Spina Bifida and Hydrocephalus closer to the people. Learn more about this event in the Press here and here.

You are invited to watch the PUSH livestream!

The 'P.U.S.H' LiveStream 2022 (People, United, for Spina Bifida & Hydrocephalus) happens every October 25th (World Awareness Day of Spina Bifida & Hydrocephalus), and is an opportunity to Connect, Celebrate, and Amplify some of the many voices, stories, and abilities across our Local & Global Community of Spina Bifida & Hydrocephalus. See the International Federation for Spina Bifida and Hydrocephalus' contribution at 20m16s.

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IF Members Festus Fajemilo Foundation & Spina Bifida Hydrocephalus Association in Nigeria activities for World Spina Bifida & Hydrocephalus Day 2022

- 5th October - Media Chat on Radio/T.V stations

- 26th October - Visit to Chief Medical Director - Lagos State University Teaching Hospital on advocacy to push for comprehensive continence management.

- 26th October - Courtesy Visit to the General Manager - Lagos State Office for Disability Affairs.

- 20th  -29th October - Social Media Campaigns 

IF Member from Romania, Asociatia Romana de Spina Bifida si Hidrocefalie, celebrated the World Spina Bifida and Hydrocephalus Day 2022!

IF Members in Romania held two important events, one in Bucharest and one in Sibiu, which is a beautiful old city in the middle of Transylvania. They children and adults with Spina Bifida, parents, grandparents and neurosurgeons. Furthermore, this was an excellent opportunity to exchange experience and to learn from each other.

IF Member from Norway raise awareness on SBH on the World Spina Bifida and Hydrocephalus Day 2022!

On the occasion of the World Spina Bifida and Hydrocephalus Day 2022, IF Members RH-foreningen in Norway opened a stand in Rikshospitalet in Oslo. They have also been out and delivered brochures to other hospitals and health centers around Norway to raise awareness of Spina Bifida and Hydrocephalus.

IF Member Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH) outdoor activity for WSBHD22!

IF Member from Belgium - Flanders - organised three activities with their members on Sunday October 23rd to celebrate the World Spina Bifida and Hydrocephalus Day 2022: they first held a presentation, then they went for a walk and finally they enjoyed a barbecue dinner altogether.

World Spina Bifida and Hydrocephalus Day 2022 celebration in Bangladesh

Pictures received from a joyful event at Bangladesh Medical College on the World Spina Bifida and Hydrocephalus. Also covered in the local newspaper. Congratulations! 

The NINS&H Bangladesh celebrated the World Spina Bifida and Hydrocephalus Day with a beautiful cake!

The NINS&H Hospital in Bangladesh works with patients and families with Spina Bifida and Hydrocephalus with hope to achieve a quality life. On WSBHD22, a talk was held in the hospital together with the Hospital Director and joint director, including patients, guardians, hospital staff , nurses and doctors.