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2022 THEME

WSBHD22: Elevate Your Voice


Our vision is a society that guarantees the human rights of children and adults with Spina Bifida and Hydrocephalus (SBH), and celebrates their contributions in all areas of life, while guaranteeing equity at all levels and for all.


The UNCRPD represents a major milestone in the continued advancement of the rights of persons with disabilities. The convention outlines the human rights and fundamental freedoms of persons with disabilities and the obligations of States Parties to the UNCRPD to advance and protect those rights.

Accessibility and inclusion are challenges frequently encountered by persons with SBH. With stigma, discrimination and lack of awareness creating further barriers to the full enjoyment of life. Therefore, IF shares with you the theme for the World Spina Bifida and Hydrocephalus Day 2022: “Elevate Your Voice”.

Join IF in elevating your voice! 




In a nutshell: 

  • Share the WSBHD22 Toolkit with your members and partners! [Click here for Spanish version]

  • Participate in IF's WSBHD22 Conference 

  • Join IF Regional Side Events

  • Take part in the WSBHD22 Talent Show [deadline October 17 2022]

  • Send your testimonial video for WSBHD22 [deadline October 17 2022]

  • Support IF, small or big, in its mission to advocate for the rights of individuals with  Spina Bifida and Hydrocephalus through donation!

As every year, IF is looking forward to joining its Members and the SBH community to celebrate this important day. Therefore, IF has developed key messages (both as text and as posters in PNG format) to facilitate raising awareness on #WSBHD22.


We invite you all to get involved and express yourself on living with SBH through the WSBHD22 theme “Elevate Your Voice”!

When you share messages, posters or testimonial video, please do not forget to tag IF @ifsbh so we receive the notification of your contribution. In this way, we can more easily join forces to celebrate the #WSBHD22.

25 OCTOBER 2023:


All the materials and social media toolkit published by IF intends to facilitate everyone to join us and celebrate #WSBHD22​ so please, feel free to share this information widely among your network.

For any general question about WSBHD 2022, please send an email to

WSBHD22 Banner.png
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