2019 THEME

In 2019 the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the 8th World Spina Bifida and Hydrocephalus Day (WSBHD) through its “The Full Picture” campaign.



In 2019 IF has a double celebration: its 40th anniversary and the WSBHD on October 25. Therefore, we invite the entire SBH community to join us in this double and special celebration.


This year’s WSBHD we want to look back and get some good energy from all the work done together with our members and partners so we are launching our '‘The Full picture’' campaign!



In order to bring attention to the topic, we have planned different actions:


  • What will IF do?

As in previous WSBHD editions, we will promote an active awareness campaign on social media: sharing posters, key messages, relevant events around the topic, hashtags, banners… For this reason, we will share a social media toolkit including all the visual materials so people can raise awareness on WSBHD by sharing it. We will keep you informed about the launch!


Our main activity for 2019 WSBHD focuses on collecting 2 things:


- Horizontal photos AND

- Your answers to some questions that can be answered as a written text or as a video

Further information and some technical requirements are explained in the guidelines provided below.


IF's members and people with spina bifida and hydrocephalus (SBH) and their families are welcomed to participate.


In order to support those who are willing to join the campaign, IF has prepared the following guidelines with information about what to do and how to participate. Download the guidelines here.


  • What can you do?


We need your support to reach as many people as possible who may want to submit their testimonies and photo in order to show our members' perspective on IF's evolution and work.


Check and share the guidelines and feel free to ask any questions to IF Communication Coordinator Carmen Clemente at carmen.clemente@ifglobal.org



IF will share key documents and resources that might be useful for your activities and actions. Feel free to use and share:


1- Download the practical guidelines to join 'The Full Picture'' campaign (PDF)

2- IF's new temporal logo to celebrate IF's 40th anniversary 



We will be happy to also share your photos and information about the activities you organise for WSBHD 2019 at local/regional/national level. So please, send your material to our Communication Coordinator Carmen Clemente at carmen.clemente@ifglobal.org

EXTENDED DEADLINE: Thursday October 17, 2019



T: +32 02 502 04 13
E: info@ifglobal.org


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